Control of patient information in the COVID-19 era
An expert panel discussed the COPI notice extensions and implications for biomedical research and regulation
How should confidential patient information be used in the future? Our report on the COPI notices explores this question and more. View it here.
Following the release of the PHG Foundation’s in-depth report on the Control of Patient Information (COPI) notice extensions during the COVID-19 pandemic, on 6 December we discussed the key findings.
The new report, released on 30 November, considers how regulatory changes to the governance of patient information have impacted genomic and medical research, and whether these changes should be integrated into the regulatory framework longer-term.
An interactive panel of experts reacted to the findings, and add their own valuable insights.
Watch the recorded discussion here:
Chaired by Dr Colin Mitchell, Acting Head of Humanities, PHG Foundation, the panel included:
Anneke Lucassen
Director, Centre for Personalised Medicine
University of Oxford
David Seymour
Executive Director
Health Data Research UK (HDR UK)
Jacob Lant
Head of Policy, Public Affairs and Research and Insight
Healthwatch England
Alison Hall
Senior Advisor (Humanities), PHG Foundation