Call for evidence on the current data protection legislative framework

Consultation response

In this consultation response, we focus on a small number of questions which have particular relevance to our work and from which general principles can be drawn. We make some general points about:

  • The nature of genetic data
  • The inadequacy of specific consent as a prerequisite for epidemiological research
  • The nature and linkage of medical records between family members  in the context of clinical genetics

Ministry of Justice

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